Today I thought I would make today’s post a dual purpose post. First, I will give a quick update on my health. The second half of the post I am going to address a question from yesterday’s post on how I am holding up after the treatments.
Well the gvhd has continued to behave over the past week so I will be starting another taper today at 90mg. Hopefully soon I will be posting a 0mg update, although that will be many weeks away
As most of you know I have been battling with a cough for the past month or so now. We have run many tests to make sure it is not an illness. So far all tests have come back negative. Today I had another CT scan of my lungs just to make sure everything looked good, which it did. The doctor was really happy with how my lungs looked. He said my cough could maybe be caused by my windpipes being a bit inflamed so he is having me try a puffer twice a day to see if this helps.
I found out today an explanation why I have been much more exhaustion over the past couple weeks. Our bodies produce steroids naturally. Once you start high dose steroid treatment for extended periods of time our bodies stop producing the steroids on their own. Once you begin to taper the steroids your body doesn’t start producing its own steroids right away. This causes you to feel tired because your body is not producing its own steroids or getting them from pills.
Holding up after the Treatment
Someone asked a question how I was holding up now after going through the intense treatments. I figured since the update was super short this week I could address this a little bit and explain a bit of what the recovery was like from treatments.
The imagery I used for to illustrate what the in hospital treatment was like could be considered a little hyperbolic but the treatments were so intense it justified such strong imagery. One of these days I will do a post to give a more detailed description of what it was like actually like going through these treatments, but let’s just say there was a lot of laying in the fetal position, eating only popsicles and a couple days of morphine J
Don’t feel too bad though, if there were records to be broken for healing, I am pretty sure I would have broken them in both my induction and transplant hospital stay. For both rounds the nurses were flabbergasted with how fast my body recovered and rebuilt itself. In both cases my blood counts were all back to normal levels and I was discharged before day 20. Most patients are in the hospital for a minimum of until day 30, and many times extending into day 40 and beyond.
From a physical standpoint I have responded very well to the intense treatment without too many side effects. So far the only major physical side effect I have had is my long nerve endings have been damaged by one of the chemotherapy drugs. This results in my toes are always being numb and feeling cold. There are obviously other side effects but the cold toes are the only thing that affects my day to day life right now.
Well I hope that gives a little insight into how I am physically holding up after the intense treatments. As always comments are always welcome but if you have any specific questions please feel free to ask.
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